WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."


Showing posts with label sacrum. Show all posts
Showing posts with label sacrum. Show all posts

Sacrum: the Sacro Wedgy

If your hips are wonked (one side is rotated or higher), try out the Sacro Wedgy - sacrowedgy.com. I do this before P.T. daily.

The woman you will call to order it from is Cynthia, the founder's daughter. She is passionate and wants to "make it work" for you. I ordered the pink woman's wedgy only to return it for free and get the man's blue wedgy because I am tall. I use two foam lifts under the wedgy to raise me up. 

Picking Shoes

I knew high heels were bad. Bad! But I didn't know that some regular shoes were better than others. Now I evaluate potential shoes mo' better.

I want:
  • A wide toe-box.
  • A flexible sole (see my video on youtube.com describing this in more detail.)
  • Solid lateral support as I will wear the shoe almost all day, everyday; I don't buy shoes for "pronation" or "high arches" even though I have both. I would rather allow my foot to move through its natural gait. I need my natural correction to (at least eventually) come through my body.
  • a shoe with a removable insole so that I can fit a lift in. On a side note, I have had numerous pairs of orthotics of all different types. I am much happier using my home-made lift that I can adjust up or down as needed rather than any of the 5 types of orthotics I've had. That's not to say don't get them, it's just my experience so far.
  • a shoe that holds my foot in such as sneakers or Teva-type sandals.


But what about dress up? This is where I have a few options. None are great:
  • Dansko clogs (their "professional" style) kind of have a bare foot feeling;
  • Flat boots with a flexible sole; and
  • Ballerina shoes with a strap (try the Naot brand for super comfy and cute).

And I recently found a store here called "Sole Desire"that links to a website that I will find and post. The shoes are neat and you might see brands you like.

Been a bridesmaid wearing Converse? Yes.

Pudendal Nerve Entrapment Synopsis

Here are good synopses of the mechanics of SI pain. Yes, he talks very fast:

http://www.youtube.com/watch?v=BaePO6wQBtk&feature=related

http://www.youtube.com/watch?v=1iwmcCw4bAw doctor mechanical explanation and review of treatments

Explanations of Sacrum Instability

Here are good synopses of the mechanics of SI pain. Yes, he talks very fast:

http://www.youtube.com/watch?v=BaePO6wQBtk&feature=related

http://www.youtube.com/watch?v=1iwmcCw4bAw doctor mechanical explanation and review of treatments

Yipee. Four Months (Almost) No Pain!

I went from distraught and doing really poorly to having an extended period of little pain in my sacrum and down my right leg (yes, still can't have sex). I felt like I really was healing finally. What helped? A few possibilities:

1. It coincided with me going up on my anti-depressant; or
2. I got new sacrum stabilization exercises from my physical therapist; or
3. I saw my rheumatologist who commented that I had trochanter bursitis and gave me some suggestions for self-treating. I looked it up and you can have a number of bursa located throughout your pelvic area due to poor mechanics in your pelvis or hip attachments. She stuck her finger into the area of a bursitis and, wow, it hurt for a few days thereafter.

Next post: self-treating bursitis