WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!"

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. Well, I’m not…so, welcome to my blog! There aren’t definitive answers in medical literature to explain the pain cycle of pelvic pain and how to heal it - yet. My hope is that my 21-year obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."

Sacrum Stabilizing Exercises

I just posted my current exercises on youtube.com. Use http://www.youtube.com/watch?v=KIBYVTJEqzs or "sacrum stabilizing exercises" in the search box. My "channel name" is vestibulitis. The exercises are really helping my sacrum pain. That, plus the serola belt, plus the shoe lift are getting me pretty far. The biofreeze, regular exercise, Klonopin tablets (not the pills but the oral tablets), upped anti-depressants, and avoiding "unwise activity" are getting me the rest of the way there most days. I am feeling much better and can do more.

"Unwise activity" is a term used in the book "How to be Sick"; I found this book helpful in having mental strategies when I am in pain. Unwise activity in my life can be gardening, cleaning, cuddling in bed, and sitting down too long, as examples.

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