WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."


Imaging of the Pelvis and Nerves

UPDATE:
My imaging came back with a big surprise: my pudendal nerve is healthy, but my sciatic nerve (different from using the term "sciatica") is dysfunctional. I see this as a pretty great development because more doctors know and treat the sciatic nerve. The rest of my bones, ligaments, and muscles are in good shape (also great news). This was what the MRI from UCSF showed. The machine was called a Tessla 3 (as opposed to the less defined images from the standard Tessla 1.5)

If you read below, you'll see that when I wrote this post I was excited to see the new doctor at Stanford. The rest of the story is detailed in a blog called "Shame on You Dr. Hah". The title says it all.

ORIGINAL POST:
I saw Dr. Hah a pelvic pain specialist in the Stanford pain department. I have been doing a ton of research on pubmed.com which publishes abstracts of research and concluded I needed an MRIN. The "n" on the end stands for neurography and until I did the research, I didn't realize there was a way to image the pathway of nerves.