Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."

Back in Physical Therapy

I dislocated my ankle in July on a stupid little hike and went into physical therapy with a pt familiar with my pelvic woes. After a few months, she said that she had done all she could for my ankle in isolation, but that I needed to start pelvic therapy because the ankle problem was influenced by my unstable hips.

Bummer. On the other hand, hurting my ankle gave me the opportunity to work with the physical therapist on changing how and where I place my feet when I walk and learning about my pelvis in relation to my feet. It feels very odd. The "old me" walked with what I thought of as assertiveness - shoulders back, confident, long strides landing on my heals. Now I walk with my shoulders rolled into their natural position forward, my chin tilts down while I pull my head back and up (the book "Eight Steps to Pain Free Living" by Esther Gokhale describes the head placement well); I take smaller steps with the primary impact of my foot being right behind the ball of my foot. I feel sometimes like I am going to fall on my face because it is so different. But apparently this is the path to better mechanics and stability.

And, now I am with an awesome physical therapist Heather Rose at Palo Alto Medical Foundation. Realistically, I don't think I will be cured. The pain syndrome itself (vulva aside) has been going on for too long. But there are many ways we are focussing on improving my quality of life. Who new? More to follow...

1 comment:

  1. Physical therapy treatment can be very successful in the treatment of lower back pain caused by arthritis and joint degeneration.