WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!"

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. Well, I’m not…so, welcome to my blog! There aren’t definitive answers in medical literature to explain the pain cycle of pelvic pain and how to heal it - yet. My hope is that my 21-year obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."

Topicals

Update Nov. 17, 2016
My current favorite is called V Magic and is available on Amazon. It is a non-petroleum based ointment.

From the original post, I recently learned that I should/could have tried testosterone and progesterone creams.

I have also tried Capacin Cream...once...never again.

And there is a medical marijuana product called Foria for female vaginal pain. I haven't used it yet, but ordered it.


ORIGINAL POST
You have likely experimented with various topicals to improve your vulvar symptoms. These are all safe according to dermatologists, pain specialists, and vulvar pain specialists that I have asked.

My favorites are:
  • 1% Hydrocortizone (over the counter) reduces inflammation and builds up your skin thickness (at higher levels, it actually deteriorates skin health and thins out the tissue. Don't use a higher level);
  • KY Silk-E, (over the counter) provides protection against rubbing when the pain isn't too bad;
  • Acid Mantle Cream (over the counter) to use when your burning is bad;
  • Crisco (my new favorite);
  • Hydrogen Peroxide used just before the Crisco.
These treatments have not worked for me:
  • Lidocain and Prilocaine Cream 2.5%/2.5% (prescription) numbs your nerves, but burns;
  • Lidocain Hydrochloride Jelly 2% (prescription), numbs your nerves, but burns;
  • Lidoderm Lidocaine Patches 5% (prescription), numbs you out, a hassle to apply - it adheres like a sticker onto your vulva;
  • Estrace Cream .01% (prescription), builds up skin thickness, but also affects your overall estrogen; levels
  • Elidel 1% (prescription), an immunosuppressant typically used for eczema;
  • Chromyln custom-made in a grape-seed oil base (prescription), anti-allergy.
I have not tried the following (although these are also doctor recommended):
  • Capacin Cream (over the counter), supposed to burn like hell, but kill off nerve hyper-sensation;
  • Estrogen and Androgen Cream custom-made (prescription), a relatively new idea.

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