Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!"
I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. Well, I’m not…so, welcome to my blog! There aren’t definitive answers in medical literature to explain the pain cycle of pelvic pain and how to heal it - yet. My hope is that my 21-year obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."
Vulvodynia and Vestibulitis
Vestibulitis is then talked about as "primary vestibulitis" or "secondary vestibulitis". I don't believe that these designations are noteworthy, except in defining who is being studied and in predicting recovery outcomes. The diagnosis of primary vestibulitis means that you have never had sex without pain. Secondary vestibulitis has an onset after you have had painless sex during your life. But in both cases, it's not all about sexual pain. Vestibulitis affects how you feel all the time. It burns. The treatments approaches for both are the same, but primary vestibulitis has a lower recovery rate.
I have primary vestibulitis and have had it for at least 14 years, but my guess is that I began having symptoms in high school, 24 years ago. I am not typical (in fact, I am extremely atypical) so don't despair. My experience is not going to be your experience. What I am is practiced in all the strategies to try. I have improved and hope you will too. Perhaps you will count your treatment by months and not by years.