Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!"

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. Well, I’m not…so, welcome to my blog! There aren’t definitive answers in medical literature to explain the pain cycle of pelvic pain and how to heal it - yet. My hope is that my 21-year obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."


The symptoms I experience are typical of women with vestibulitis. I had a friend describe sex and she used the exact words that I do (and her description was unprompted by me). It feels like being stabbed with acid being poured on at the same time. Unsexy. Another symptom is what I term "walk around pain" of chronic burning as you go about daily life. Finally, in more extreme cases where the pelvic nerves are involved, primarily the pudendal nerve, even sitting hurts because you are sitting on an aggravated nerve.

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