WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."


Review: Commandos, An Underwear Alternative

UPDATE: 6/23/2016
I decided a year ago to try to avoid underwear and all crotch abrasion. The Commandos (below) didn't do it for me (although still worth a try for someone else). The surface feels a bit like felt and I don't think that is vulva-happy. Silk satin, please! Hmm. What if I used a spray-on fabric glue to attach silk fabric to the crotch over the felt? I still like the overall concept of Commandos and they adhere really well.

My wardrobe (other than for exercise) currently is all skirts and the beloved overalls.

I've noticed that any touch - clothing or husband or myself - will give me a flare in pain that last for four days.


ORIGINAL POST
No more underwear! Commandos are meant to be adhered to the crotch of your pants in order to avoid wearing underwear. They cost about $20 dollars per pack of 8 - expensive to me. If you are willing, they will stay on a given pair of paints securely for for multiple wearings.

The good: no cutting into your inner thighs like most underwear does, the surface is of a non-irritating material and is certainly better feeling than a pantyliner, and it adheres very well to the crotch of your pants.

Pudendal Nerve Decompression Surgery

I am going down to consult with Dr. Michael Hibner in Phoenix to have a vestibulectomy or a surgery to free the entrapment of my pudendal nerve. Turns out, a video of him performing the surgery is on youtube. Pudendal Nerve Decompression Surgery

V-Magic: A Soothing Topical

Finally, an ointment that I like. It is nice to have my vulva protected. I found this about a month ago and it is great with no irritation. It is more expensive at $20 than Vaseline (a petroleum-based product that irritates me even though doctors say that isn't possible) or Crisco (which goes on thinner), but it is worth it to me. V Magic Site


Pelvic Congestion Syndrome

Pelvic Congestions Syndrom is having varicose-like veins in the pelvis that are causing pelvic pain. The kinds of doctor one might consult would be an interventional radiologist, a physiatrist or physical medicine doctor who has a pelvic specialty, a vascular doctor, or maybe a urogynecologist (this would be the kind of doctor easiest to find.)