WELCOME

Edit: I WAS CURED AFTER 22 YEARS! I had a vestibulectomy Dec. 2016. The recovery was easier for me than having sex ever was. It took about 5 weeks. I have included my recovery photos. Look for the blogpost "I'm Cured!" and "My Vestibulectomy".

I’m a great woman with a pissed-off vulva. I have “primary vestibulitis." Most people are uncomfortable discussing their genital pain in public. My hope is that my obsession to find help for myself will make your experience shorter, easier, and less painful. P.S. Recently "vestibulitis" has been renamed to "vestibulodynia."


Biopsy of the Vestibule

For years no doctor would biopsy my vestibular skin saying it would only add to the trauma. Finally, I encountered a gynecologist who suggested it was appropriate. It is done in the doctor's office and consists of a lidocaine injection (the painful part) and then a 3mm "punch" that extracts a tiny amount of skin. One stitch that dissolves on its own. No pain afterwards. Easy peasy. The results came back as "minimally chronic inflammation." Unfortunately, inflammation is not well understood medically. I have added ibuprofen into the mix to see if that will help because it is an anti-inflammatory. I am also strictly following my allergy diet.

PTSD from Sexual Abuse

I have had people say to me that my vestibulitis is the result of past emotional trauma. In my case, sexual molestation as a child. I had dismissed this entirely because I know it is a true physical disorder. However, I am now looking into PTSD as a contributor.

When I was molested by a teacher in 4th grade, I had to sit on his lap many hours each day. In response, I contracted my pelvic muscles tightly to try to elevate myself off his lap and that may have begun a muscle pattern that I continue today. As I have mentioned in other posts, chronic muscle tightness can compress nerves and cut down on blood flow that keeps your vulva healthy.

I am reading "The Body Keeps The Score" which is excellent and focuses on the physical effects and the physical healing of Post Traumatic Stress Disorder. I am also considering doing EMDR - a therapy based in rapid eye movement to access and resolve trauma. I guess I am just posting this because after many years of dismissing this part of my history and saying that I was over it, I am now exploring the idea.